Help Shape the Future of Brain Tumour Care: Share Your Experience
· Gena Health Team
We’re proud to support a new research initiative from OurBrainBank UK, launched in collaboration with the Computational Oncology Group at Imperial College London.
This important study explores a question we often hear but rarely see answered with data: How many brain tumour patients in the UK are exploring or receiving treatment outside the NHS — and why?
What's the study about?
While it’s known that some people seek care beyond NHS pathways, we still know very little about:
How common this is
What types of treatments are being pursued
What costs are involved
And how patients and carers make these decisions
The goal is to see whether there are treatment needs the NHS isn’t currently meeting.
Who can take part?
If you’re:
A UK adult (18+) eligible for NHS treatment
A patient, carer, or carer of someone who has passed from a brain tumour
The survey is simple, anonymous, and takes just a few minutes: Start the survey here
Your voice can help researchers understand unmet needs in brain tumour care and guide future improvements. We encourage you to take part — and to share the link with anyone else who might be eligible.